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help.. what does this pain sound like to you?
  • meandmy243meandmy243
    Posts: 6,338Member
    My doctor keeps handing me muscle relaxers but they are not helping!! I have a constant charlie horse feeling in my whole body i get electrical shocks and tingling through out my body when i dont move for a few minutes followed by numbness and waves of intence burning pain. I have to constantly pop my fingers cause they throb. My feet always feel like ive been walking barefoot on concrete for hours. And throb like my hands do.. Every joint is stiff and creaky. Odd muscles ache like my chest muscles and the inside of my thighs or the muscles that run the outside of my calfs.. I dont know what to do ive been tested for everything under the sun and its all negative.. My.muscles feel tired and almost fluish. My sinuses are always clogged.. I feel 90... Im only 29..
    mom of wild children
    going to the chapel 7/5/2014
  • canadamom
    Posts: 867Member
    Fibromyalgia?  Lupus?  Rheumatoid Arthiritis?  Diabetic Neuropathy?

    Keep asking and get a new doctor if you aren't getting answers.  No one should live in pain.
  • canadamom
    Posts: 867Member
    Thyroid issues can even have systmic results - and you can still be having problems if you have a normal TSH - maybe see an endocrinologist?
  • meandmy243meandmy243
    Posts: 6,338Member
    Ive been tested for all ra, lupus, thyroid and they say im to young for fibro... And no diabetes... They keep saying i have a pinched nerve but total body pain for a pinched nerve?? At this point i no longer beleive thrm... Since all the pt i have done for this so called pinched nerve even do anything for me..
    mom of wild children
    going to the chapel 7/5/2014
  • Charlotte_SometimesCharlotte_Sometimes
    Posts: 1,756Member
    Ever have any kind of back injury?

    A lot of your symptoms are like my DWs but she's always been told it was due to a severe back injury when she was a teen.   No proof of that, just what they told her (she hyperextended her back on a trampoline and it should have been broken but miraculously wasn't).
    "But a lesson must be lived
    In order to be learned"

    Ani DiFranco, Manhole
  • meandmy243meandmy243
    Posts: 6,338Member
    Nope i slipped an fell a few months ago but ive had this for a while its just progressivly getting worse..
    mom of wild children
    going to the chapel 7/5/2014
  • SammieSammie
    Posts: 7,279Administrator, Moderator
    Sounds exactly like fibro. Fibro is a bit different for every individual in terms of their problem areas, pain levels, etc but you seem to have the tell tale signs especially with everything else being ruled out. Fibro isn't typically diagnosed in younger adults, BUT it can and does happen. You shouldn't have to be in pain and you definitely don't need to be taking pills if they aren't working, so I would think about switching doctors if possible. Perhaps finding one that specializes in pain management. They are typically more well versed and empathetic and will have more experience dealing with your symptoms/getting you a diagnosis.

    Also, have you tried a chiropractor? Or acupuncture? I know it can be spendy, but some insurance plans will cover it with a doc referral, so inquire with your doctor about these things as well. Good luck hon!

    community-manager


  • jezebeldelilahjezebeldelilah
    Posts: 337Member
    MS, Fibro, chronic fatigue...u need to keep going to docs. A neurologist and a rheumatologist. Get a mri of your brain for m.s. But that's describing my pain and that's Whst I have. It can take time pinning down auto immune disorders
  • deviltwinsmommadeviltwinsmomma
    Posts: 2,305Member
    Sounds like RA. like @chlomom said you need to see a specialist ask your PCP for a referral to a rheumatologist.
    my mother used to sing me a song. It went like this: "Life is short, life is shit, and soon it will be over.
  • AnonUser31
    Posts: 327Guest
    One of my not so much of a friend, friend, has fibro. She's only like 26.
  • hallfamily727hallfamily727
    Posts: 277Member
    Insist on checking for fibro and MS.
  • anonymommy
    Posts: 1,420Member
    My SIL has fibro.  She's 34, but we've known about it for years.  I've never heard of someone being too young for it.
  • StarsStars
    Posts: 1,054Member
    My first thought is MS.  Have they done a sed rate? 
    apsycho

  • TurthipoTurthipo
    Posts: 340Member
    Ryanoids (sp?) Can be like that too... Def get them to look into fibro
  • meandmy243meandmy243
    Posts: 6,338Member
    They did a sed rate last year when i had inflamation show up high on blood work.. It came back with out a consern. I gotta see if i can get into the docs at 5...
    mom of wild children
    going to the chapel 7/5/2014
  • pdxmama
    Posts: 1,470Member
    Fibro and chronic fatigue. You aren't too young. It may not be as common, but I've known people with one or both of them in their 20s.
  • Luvlyssa
    Posts: 2,953Member
    I haev a good friend who was (finally after about 3 years of the pain you describe) was DX'd with fibro at age 27.... so no. you're not too young. that's like saying you're too young for type 2 diabetes... it may not be "omg textbook!" but it happens. that's how AVERAGES HAPPEN YOU MORON DOCTORS ... (sorry. i have anger issues with docs right now)
    Just keep swimming. Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim.
  • SpringSpring
    Posts: 1,427Member
    My doctor has said if my weird aches and pains last until christmas, I should think about starting treatment drugs for fibro to see if they help and I'm only 25. So I'd get a second opinion on being too young. I have very similar problems to yours, including the always stuffed sinuses. I've been trying allergy medicine first because another doctor told me that sometimes bodies can have a brutal allergy to something and react as though you have a mild case of the flu. For months. And I don't mean to freak you out, it freaked me out, but I was told to have my home tested for black mold which can cause the symptoms you described. Does anyone else in your family have weird aches and things like that?
    "Sometimes I question my sanity. Sometimes it replies."
  • AnonUser33
    Posts: 743Guest

    Definately sounds like Fibro. That is how mine felt when I first noticed it. I was diagnoised 7 years ago, I am 35, but the pain started in my early 20s.

    As far as I know there is still no blood test to dx Fibro so its a little more tricky. Also a lot of doctors do not believe it even exists. I was dx'd by a neurologist. My mom was dx'd by a rheumatologist.

    Good luck. Hope you feel better

     

  • ImWendyImWendy
    Posts: 6,561Member
    Too young???!!! Omg hon. Get a new doctor. This one doesn't know what the hell he's talking about. That's like saying ignore the lump because you're too young for cancer (without the death part). Jeemus jumping jellybeans.
    deus ex machina
  • meandmy243meandmy243
    Posts: 6,338Member
    Thats the hard part im on state insurance and will be for one more year until i can switch to insurance through work... ( medical insurance though work is about 17000 a year since ive been on state for a while with high blood pressure ( which i dont have anymore) they kept me on a chronic issues..
    mom of wild children
    going to the chapel 7/5/2014
  • HappypillJILLHappypillJILL
    Posts: 2Member

    I would definitely go the Fibro route - I work for a chiropractor, and have seen lots of it.  Google it - it has a lot of specific areas of pain that you want to look for.  If that doesn't match, you want to look into any nerve disease/issues. 


    Be your own advocate, PUSH doctors to test.  :(