What to Expect When Your Baby has a Congenital Heart Defect


After the harrowing journey of labor and delivery, I was given the kind of news no mother wants to hear- “Your baby has a congenital heart defect (CHD)”. In my case, Eden was born with Transposition of the Great Arteries- a defect that without immediate surgery, would end in death. So without any preparation or warning, I was thrown into the world of cardiologists and intensive care units. My baby was whisked out of my arms and instead of her first bath, first nursing session and first poop, she was placed in the care of doctors and nurses to suffer through endless poking and prodding. They tried to explain to me what was happening to her, but I couldn’t grasp the enormity of the situation. I didn’t understand about prostaglandin hormones and central lines, I just wanted to know what to expect- in laymen’s terms.

You might be in the same situation. Here is the kind of realistic advice I needed during those first few days:

1. It will take one or two nurses to get your baby in your arms. Every new mom wants to hold and snuggle her infant. A baby with a CHD (prior) to surgery will have several wires attached to her. Expect a central line going through the site of the umbilical cord, as well as other IV lines in her hands or feet, plus all the wires used to monitor her vitals. When you think you want to hold your child, make sure you have gone to the bathroom, had a snack, and are in a comfortable position. Once she is moved into your arms, moving her back to the bed won’t be simple.

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2. Nursing may not be an option.The nurses in the PICU might encourage you to nurse her if you planned to breastfeed. If you try, do not get discouraged if it isn’t a feasible option. The lines to contend with, plus a CHD baby’s labored breathing might make breastfeeding stressful. Your baby may be on a breathing machine (CPAP or a ventilator) both of which make nursing impossible. Even if you are unable to breastfeed prior to surgery, you will be able to try again when she is better. I didn’t start nursing Eden until she was six weeks old. We managed to wean off the bottle and she breastfed for two years. Don’t give up hope and don’t beat yourself up if it doesn’t work. You and your baby have enough to worry about — feeding should be as stress free as possible.

3. Expect a fussy baby. This seems like an obvious observation, but there are other reasons besides wires that are making your baby fussy. Some infants are given a hormone called prostaglandin. All infants are born with a small hole in their heart that closes up after a few days. For children with the type of defect Eden had, the prostaglandin is given to keep that hole open, so enough oxygenated blood will get distributed throughout the body until the surgery corrects the problem. This hormone causes fever and irritability. Another reason for fussiness? Since there are so many procedures to be performed, infants with CHD cannot be swaddled, a common soothing technique. If you want to simulate that experience, try gently pressing in on either arm of your child with your hands. Subduing her limbs with a bit of pressure can simulate the feeling of being swaddled.

4. A spinal tap might be necessary prior to surgery. Most parents cringe when they hear the phrase “spinal tap” as it is associated with pain and trauma. Since your child is about to have open-heart surgery, doctors will want to ensure that your baby is healthy enough for the operation. A spinal tap is used to test for infection and meningitis, and is often standard procedure prior to major surgery.

5. Try to get some rest prior to “operation” day. The thought of leaving your baby in the PICU without you is hard to imagine, but you will be better able to help your child recover if you are rested. Find a friend or parent to stay with your baby overnight and go home and get some rest. You will want to have energy for those post-op recovery days. Your baby might be on a mild sedative like Ativan, and won’t be awake enough to miss you.

6. Expect ups and downs. Every day in the PICU is harrowing. Monitors beep the minute a vital sign dips below normal range, and you may find yourself going crazy watching all those numbers. Keep in mind that “normal” ranges are not applicable to your child. While a healthy newborn should have O2 of 95 or higher, babies with CHD’s have O2 levels in the high 70’s and 80’s. This is to be expected. The brain is the last organ to be deprived of oxygen so you should not worry about brain damage. In some cases, doctors want the O2 level to stay below normal so it doesn’t put extra pressure on a sick heart.

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7. Visitors will be limited. As is policy with most intensive care units, the ability to have visitors will be limited to family only. In the winter months, many hospitals will not even allow children under twelve due to the high instances of cold and flu. If you have other children at home who are unable to visit prior to the operation, bring home pictures and video of your little one so they can feel a part of the baby’s life.

8. Remind yourself that many congenital heart defects are correctable. As surgery approaches, practice deep breathing and meditation. Have others bring meals and do housework for you. Keep this fact in your head: Lots of children survive and thrive after heart surgery.

Eden is now seven years old and I go months forgetting she was born with such a severe defect. Those days may seem decades away, but it will happen; the trauma of pregnancy, birth, and a sick baby won’t last forever.

About the writer

Julie Stoian is a full-time web designer and blogger, making her mark on the Internet with a tech blog called Fabulous Blogging. An award winning lifestyle blogger as well, she was chosen as Anderson Cooper's blogger of the day in 2012 and appeared on Anderson Live several times, as well as BBC World Have Your Say. Off the Internet, she is a mom of four, a musician, foodie, and theater buff.

From Around the Web


Abby Conway 4 weeks ago

My son was born earlier this year with HLHS, it has been quite the journey to say the least and I have learned alot…. I have a heart mom blog over at http://www.foureasthearts.com/ where I blog about our journey and post helpful content. This journey is difficult but there are so many places to find support like I did in this article. Thank you Julie!

Ali Annan 1 month ago

I also think the thing that scares me the most about my TGA boy is the fact that the docs have told me numerous time that if he has heart pain he won’t feel it due to the arteries be dissected and the main nerves to the heart being severed it scares a lot are there other TGA mums that have these worries

Ali Annan 1 month ago

My son now 10 was born with TGA also everything you have said is so true like you we had no idea he was so sick until he was born it’s the most harrowing thing I’ve been through iunable to hold and nurse him for 3 days watching him struggle and the dips in Sats. We’re all so lucky with the amazing things these surgeons can do with our we babies. I think talking to the nurses and doctors is what helped us deal with what was going on with our we TGA Bub. We got transferred from our home town to a specialised children’s hospital 5 hrs after birth his Sats were at 36% at this stage we had no idea what they meant but he’s doing great no issues since his ohs.

Nicole toon 1 month ago

I was born with TGA, I’m now 37 with 3 healthy girls who thankfully have no heart issues. Life was hard but I’m alive and I live each day with love, health and happiness. Best of luck on your journey, trust the doctors and the amazing nurses xoxo

Anonymous 1 month ago

Hi! Thx for this. My son was born with truncus arteriosus, and a vsd. We were diagnosed in utero, but everything you said is so true. I had no idea what to expect.

I also wanted to make a comment about a comment I saw. This hoopla about zofran.. Is ridiculous. Chd are formed at 6 to 8 weeks, well before we realize we are pregnant. Most of them are idiopathic, and it would be nearly impossible to conclusively link zofran to any chd. Clearly the post below about zofran was computer generated because it said, it was linked to hole in the heart, like that is the defect. There are several names for the types of hole in the heart. Sorry to go off on a tangent. I just want these moms to know that these types of lawyers prey on us moms who are desperate for answers why our children have a chd. Just a reminder moms: YOU DID NOTHING WRONG, AND YOU DID NOT CAUSE YOUR CHILDS CHD! Our babies were chosen for a reason for the chd life. In my case I believe my son was born with a chd so I could focus on chd for my nursing speciality!!!

Lisa Spitzer MSW 5 months ago

Zofranbirthdefectshelpline.com want all Moms to knw that taking Zofran during the first trimester for morning sickness is not FDA approved. Zofran has been linked to the heart defect Hole in the Heart and we are getting calls from woman seeking to file a Zofran lawsuit.

Tara 5 months ago

My son also had TGA and we had no idea before he was born. It was so scary! I remember the nurse coming in to tell me they think his oxygen is really low, but they’re not sure. Our angel of a nurse was persistent that something was NOT RIGHT with him- against the doctors demands that he was just fine! They checked his O2 level and thought their machine was broken. St. Paul Children’s flew in to tell me (my husband was out and about yet after sleeping at home) that my son had something wrong with his heart. All I heard was “heart”, and thought they were telling me he was going to die. I started BAWLING and heard nothing else she said. They flew him out and diagnosed him, and told me that of all heart defects to have, this was the easiest to fix. I could breathe again. He had a text book recovery and came home at 21 days old- 14 days after surgery. We’ll be celebrating his 12th birthday July 31st in 2015 and still to this day, I can’t hold it together while singing Happy Birthday. Lol he has no restrictions at all but still has a slight heart murmur they’re not concerned about. :-) so glad your princess is also doing great!

beverly ban 6 months ago

i would love to add your link and try to fight for the cure

beverly ban 6 months ago

i would like to add your link to our web sight to raise awareness fighting for the cure

Erin 8 months ago

Julie-My daughter was born in September of 2014 with TGA! We didn’t have any idea until they ran the tests at 24 hours to send us home. I lived that life….27 days in the NICU. She is 4 months post op and she is perfect. I couldn’t be more proud of her every day. There is a special bond that forms between a mother and child in the NICU. We couldn’t hold her much but I talked to her constantly and I was there nearly 24/7…I only went home to shower and get clothes. She will never fully comprehend what she went through but I will carry that memory until I die. If becoming a mother changes a woman then becoming a CHD mother transforms you into an entirely new species. :)

edulog 12 months ago

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Andrea Slater 1 year ago

This picture brought back so many memories for me. We posted this to our CHD Awareness page on FB and have had 47 shares… Obviously you are telling a story that desperately needs to be told – so many moms who need to know – thank you for that.

nicole 1 year ago

thanks for writing and sharing this! all of it is 100% true! (because I’ve learned it the hard way) my, now 7 year old, was born with tetralogy of fallot. She is now a happy, healthy kid, despite the open heart surgery at 3 weeks old, and the 6 week hospital stay afterward. We had NO idea there was anything wrong until she was a week old and she got the diagnosis. This article sure would have come in handy back then. Thanks again!

Stephanie Neyland Stuhlsatz 1 year ago

What an interesting read. Our 2 year is having surgery in about a week to move an aberrant subclavian artery. I have prepared myself as best I can and have decided that I shall treat this similar to our pregnancy hospitalization and subsequent NICU stay…one day at a time. Thanks for some hope that there is light at the end of a very long tunnel ❤️

Cassi Nasman 1 year ago

My mom is Danielle Woeck Kamins and she is the bravest woman I know! I was born with heart problems and she never left my side! I’m 26 with a pacemaker and she’s still always there for me. Honestly, if it was 2am or 2pm my mom was always there next to me in the hospital! Even though I know she wanted to cry all the time… And she did sometimes but she alway had a smile for me too! I was never scared because I knew she was there!

One Funny Motha 1 year ago

Hey, Julie, my son has CHD, too. Tetrology of Follot’s. He’s totally fine although must be monitored by a cardiologist & may have to have surgery in the future, which I dread. I wasn’t there for the 1st surgery as he was adopted, but I don’t even like to think about it. I’m sure your list will be helpful to many mothers who find themselves in the same situation. I am so glad I met my little boy post-op. I can’t imagine how scary that would be to go through that right after giving birth.

Kristina Weiner Minahan 1 year ago

Every story is different. But agree with a lot.

Andrea Fowler 1 year ago

Wow. Reading this brought everything back. Fontan completion done last year and my heart warrior is starting school with her twin sister in 2 weeks

Kelly Bruce-Martin 1 year ago

Wish I had read this when I was going through this! I had a baby born with TGA it wasn’t diagnosed until after he was born! Thanks for bringing awareness!

Claire Russell 1 year ago

Michelle Beauchamp it fills me with fear to have a teenager especially a heart baby teenager!!! Is there any advice about guiding them to make the right choices with regards to putting pressure on his heart. I’m sacred my son will be easily led!

Michelle Beauchamp 1 year ago

My son was born with TGA and is now 15yrs old. The fear is always there but lessens in intensity with time. As I look as this deep voiced young man that now towers over me, it amazes me to think of all he’s been thru. He is one tough cookie…no doubt.

Tyffany Weddle Fugitt 1 year ago

Thank you! Most of that is what Max went through. We didn’t hold him until after the central line was out because it is dangerous if the baby’s not handled correctly. And I don’t think they did a spinal tap and I couldn’t breast feed but everything else we did. I think we were lucky to find out before he was born for so many reasons.

Teresa Maass 1 year ago

Really fantastic, coming from a family that has a to deal with so many new born problem (heart, reserved heart with complications, cleft, tumor, and an unknown but life threatening blood problem). I think its great that you are trying to help people know what to do. I was fortunate enough to prepare myself for Alex’s cleft, but when they told me, he may bleed to death at any minute and they didn’t know why… or when my nephew was ten days old and the doctors opened him up to discover nothing was where it should be including heart, and the veins and arteries in the heart… The wonderful thing is my nephew is a fantastic ten year old enjoying life, my son is outside playing soccer and although there are weeks when he has a lot of bruises and when it is time for an operation, we keep our fingers cross that the blood levels are good. You do adjust. and medical teams are usually amazing.

cynthia 1 year ago

My daughter was born last spring with a vsd and asd. We did not find out until she was 8 weeks old. I think it waa my mothers instinct that saved her. One day i told my family members that i felt as if though she was not growing and they all said she looked fine of course me being me took her in to the hospital the next day and when nurses saw her they looked alarmed and started runnig and poking her to hook her up with iv. I asked what was happening and they said she was on her last bit of oxygen!! I was crying and scared and to make a longer story short, they discovered it was a vsd andasd that were preventing her from growing and breathing properly. Now shes one year old and doing well no surgery planned as of yet since the vsd is slowly healing itself. Shes is a skinny little thing and doesnt walk yet but were working on it 😉

Marsha Roybal-villarreal 1 year ago

My son has had his first open heart surgery at age 5 he has aurotic bicusbid valve he had to have a Ross procedure done valve replacement which it did not take he’s a survivor and alot stronger than I will ever be

Danielle Woeck Kamins 1 year ago

One thing don’t worry to much about the monitors they soon enough you will understand all of them until then watch baby not monitors it will help you keep you sanity. Believe me the nurses know when to come running. Don’t let any of your today’s super natural Moms make you feel guilty if you can’t breast feed they have no idea what is best for a baby with CHD. Your cardiologist knows what’s best. You will find what soothes your baby mine liked having me run my finger back and forth across her forehead. Friends and family may be scared to care for your baby find someone who will willing to be comfortable learning to care for baby in case you need help or sitter.

Danielle Woeck Kamins 1 year ago

My now 26 year old daughter had her first open heart surgery at 4 months. Those first 4 month were the scariest my life. Handing her to the surgeons and nurses was on of the hardest things I have ever done. One of the Doctors said to me from this moment till she gets to recovery she is our baby we will treat her as if she is our own. It was what I held on to for that and all the surgeries that followed. Lean on family ask for help when you need it and above all have faith. 26 years later I still cherish all the moments I have with both my girls. I told my daughter that she could get the scar removed she said no she says it’s her tattoo it reminds her everyday to enjoy life.

Angela Thomas Eilers 1 year ago

This is awesome! Thanks for posting. Until my littlest was 4 days old, I had never heard the term CHD. 2 OH’s later, she’s now almost 5 and spunky, sassy and doing great. Big proponent of knowledge is power! Thank you for spreading the word

Elizabeth Reckner 1 year ago

For all the moms out there with babies who have a heart defect know normal life as an adult is possible! I lived 22 years with an undiagnosed heart defect that should of killed me in infancy. My doctors are in awe that I’m as healthy as I am. I had open heart surgery at 22 and still going good! Pregnant with my second son and all things are normal. As scary as it is knowing it could of been worse I know I am special just like each and everyone of your heart babies are! <3

Jill Hoffmann Mach 1 year ago

Thanks for sharing- my heart baby (aortic coarctation) is now a super -energetic three-year-old.

Danielle Shipp Bryan 1 year ago

Thank you for this. Our baby has a scheduled delivery four weeks from today, and he has several CHDs.

Jamie 1 year ago

Great article. We were lucky to have found out at 20 weeks that our little guy had a cplex CHD. It gave us time to ” prepare” but you can never really be prepared for what you see your little one go through. We went home early the night before surgery and I was so glad we did. The surgery day was emotionally draining. We have two more surgeries to go but our guy is a fighter.

Meredith G. Todd 1 year ago

Thank you

Natalie Rose 1 year ago

I have a heart baby! By the grace of god her 2 vsds and 1 asd are closing in there own! <33

Lisa Melo 1 year ago

I also have a CHD kid… Also born with TGA. He is now 4 and doing great. The hardest few months of my life, but it made him the superhero he is today.

Rebecca Shamblin 1 year ago

I have a CHD (aortic coarctation and bicuspid valve) and an aortic dilitation. First was surgically fixed at age 5 and second at age 31. Most important to me – I was able to have a normal pregnancy and delivery afterward, even with the added strain on my heart. I worried about that my whole life! They have very little data on it, since kids with CHD didn’t use to survive long enough to have kids of their own. I’m so relieved everything went well. So parents on this thread – if this is among your worries, know that there is hope :)

Amy Clem 1 year ago

Our baby girl was born with a large VSD that took us 2 weeks to get diagnosed. Her OHS day was the longest and worst day of my life. We really had no idea what we were walking into afterwards. Any bit of informed reading is useful for parents who find themselves in this dreadful situation.

Rachael Barajas 1 year ago

Thank you soooo much for bringing awareness to this!!! I had never heard of this until my son was diagnosed. He is now a happy, thriving, sweet 5 year old!!

Cheryl Louis 1 year ago

Yeah, not less scary. But definitely less alone. My daughter is almost 9 and has hypoplastic right heart. You adapt. You have to. The real heros are our kids. they make us look good.

Jeri 1 year ago

My grandson has 5 different heart defects. We found out when his mother was 18 weeks pregnant. Like Lorraine and her son, Brayden has Tricuspid Atresia and also atrial septal defect, ventral septal defect, pulmonary dilation and right ventricular hypertrophy. Basically the right side of his heart doesn’t function and won’t pump blood into his lungs to get oxygen. He had his firs open heart at 6 weeks, the next at 14 months and is now 4 and looking at the last open heart to complete the Fontan next summer before Kindergarten. he has had a feeding tube since 1 month old and still has to have supplemental nutrition run into it all night every night. It was scary even for me who has over 20 years medical experience. For me each surgery gets even scarier. I don’t know how his parents being only 19 and 20 and having no medical background did it and still continue to do it. He is doing great. Smaller than others his age but all boy. Going to preschool now. Medical science is amazing and he is most definitely our little miracle.

Malyssa 1 year ago

Yay Scary Mommy thank you so much for posting this and thank you Julie for writing it! As a CHD patient AND mother of a CHD child this is so helpful. I wonder if you might have a guest poster willing to write up what would be helpful to us CHD parents for relatives to read??? That would help many families as well.

Claire Russell 1 year ago

Our son had TGA. We had the most amazing sonographer who picked up the condition at our 20 week scan. I get so infuriated with people who think that scan is to find out which sex their baby is, surely its to ensure that these sort of defects are detected?!
Oliver is a crazy 18 month old and to think his surgery was at 6 days old just makes me realize how amazing he is.
I was kept in another hospital due to a major trauma caused during his delivery and all I remember thinking was, ‘I’m his mummy, I should be with him!’ I still get upset and nothing will ever take away the sense of guilt that my husband had to deal with the majority of it all alone.

    Rachael Barajas 1 year ago

    My son was diagnosed in utero at 33wks with TGA. He had surgery at 2days old and is now 5yrs old.
    Glad your little one is well!!

Pau Villanueva 1 year ago

Respect to all the parents who have been there… As a physician and new mom I don’t know what would I do and think how hard must be…

Attie Lordan 1 year ago

No experience with this but had a premie Boy and three mths in NICU. I admire you, your strength and amazing love. I remember how terrified we were, you all are inspiring. All the best to all the kids and families dealing with this.

Sheree Campbell Revoir 1 year ago

I’m 29 and was born with a CHD. I am very lucky my son’s were healthy because I don’t know how my mom got through it all. I’ve had 6 heart surgeries and will continue to need them every 5 to 7 years.

Gail Cearfoss Connors 1 year ago

My son was life flighted at 7 hours old. He had a coarctation of the aorta, surgery at 4 days old followed by seizures. He is now 6 months and doing wonderfully! It’s not so etching I’d wish on any parent, but I do feel better seeing all the people who have spent their time in a hospital, scared to death. It’s nice to know someone understands.

Suzanne Clark Sprecher 1 year ago

Moms and Dads—I’m a Mom of a chd baby, Ruby—now 9! She had surgery at 2.


It’s a race benefiting CHD kids and families! It’s going national and is awesome! Get your CHD child a cape from Heart Heroes, Inc.! It’s free!

Kymberly Swope 1 year ago

My daughter had open heart surgery at 7 mos for an ASD & VSD. She’s doing great now and it is all about adjusting to the new reality AND becoming friends with every doctor and specialist in the city

Tracey Little Wendel 1 year ago

My son with CHD is 5. Most days i don’t think about his heart condition. In those early days, I never believed I would be that way. Thankfully I had friends that connected me with parents who had been through this. This article is very true.

Louise Russ 1 year ago

My baby was born in congestive heart failure due to a vein malformation in his brain. We were also thrown into turmoil the moment he was born. Three surgeries down and one more to go, life is slowly getting easier, but he’s extremely behind on development and still has a gtube due to being to weak to figure out how to suck and swallow his bottle. Life will eventually be somewhat “normal”. He’s two now and despite his special needs he is a happy, content little boy

Crystal McClune Lutker 1 year ago

Thank you for sharing!

Nanette of HeartBabyHome 1 year ago

Thanks so much for sharing this. My youngest twin was born with a heart defect. I remember needing to hear about other heart babies who grew up into happy kids and adults. Even now, I love hearing that you can go months without thinking of your daughter’s heart issues and hospital stays.
Thanks for sharing your advice and your hope.

Megan 1 year ago

I was born with Transposition and I have recently had my first child, a beautiful, perfectly healthy baby girl. Life goes on after CHD. Know that she will grow up to be strong and be able to do anything she wants to. I admire my parents for going to the hospital so often in the first few months (my defect was corrected at 5 months), and for dealing with my constant screaming. They, and you, went through an unthinkable situation, and came out on the other side. The best thing you can do for her now is make sure she never thinks she’s not able to do something because of it. My parents never stopped me from pursuing my dreams in school, sports, and now in life. Yearly cardiologist visits are part of my life, but that’s not so bad considering babies born only a few years before me died in childhood from this defect. I’m 29 and happy.

Lorraine 1 year ago

My son was born with Tricuspid Atresia and had to have 3 heart surgeries by the time he was 2 years old. He currently is 5 about to start kindergarten and has a fontan circulation. Currently he is doing well heart wise, which is great considering he is functioning with half a heart. I must say life is getting easier for us but the first 3 years of his life were nothing I could ever have been prepared for being told when I was pregnant with him that he would require 3 heart surgeries. My mom brought me lots of food when I was at the hospital, also make sure to contact child life services when in the hospital. CaringBridge.org was a big support me as well as other social networks, and look in to local support groups for families of children with congenital heart defects.

Kristin Nosbusch 1 year ago

Many of these can be applied to the NICU/PICU experience in general… Good read.

Erin Rude Chipman 1 year ago

Thank you for sharing this. I just spent six weeks in the hospital with our little CHD miracle baby.

Joanna Mitchell 1 year ago

I wouldn’t say less scary. You just adapt to your new reality. And the fear never goes away. -Mom to a 9 year old who had a heart transplant at 7 mos.

Kim Bradley 1 year ago

Wish I had read this before my CHD baby was born.

Yvonne 1 year ago

I hadn’t realised you’d been through this Julie. I can relate to much of it, since although my second daughter didn’t have a CHD, she was born very premature, so we had months in hospital and all those wires and tubes. You are right that neonatal intensive care can be very confusing. I certainly felt that way too.

Your first point about it taking 2 nurses to get your baby in your arms was very familiar to me, as was the breast-feeding issue – my daughter was tube-fed for over 2 months.

It is such a scary time, and I’m so glad to see that your daughter is doing well now.

Andrea 1 year ago

I ended up having a super sick kiddo. There was no warning prior to his birth. There was a lot to deal with but the worst part was when he was transferred to a hospital across town. After 23 days in the NICU we got to take him home. One tip I would add is to have people bring you food. The cafe gets expensive and old. I didn’t leave the hospital for the first two weeks because family and friends brought us food and clean clothes. It was great to have the support we did. Nothing can prepare you to deal with what happens when you have a sick baby.

    Julie Chenell DeNeen 1 year ago

    That’s a great point. I was so doped up on adrenaline, I often forgot to eat.

angel 1 year ago

My husband was born with a patent ductus arteriosus (meaning below) He had surgery not even a week after he was born to close it. His mom had him when she was about 7 months along and weight about 3 pounds He still has some problems like getting some chest pains but he is 30 years old and otherwise very healthy. I know it’s scary to have a baby so early but my husband is proof that with great doctors he has grown to be a wonderful man, father and husband.

I hope your child is doing great and just know that they can still grow up to be what they what to be, my husband has been in the army for 11 years and is doing something he loves with my daughter and me by his side.

I hope that as medicine gets better things will be better for babies born with issues so that they can grow up to be wonderful people. :)

The ductus arteriosus (DA) is a normal blood vessel that connects two major arteries – the aorta and the pulmonary artery – that carry blood away from the heart in a developing fetus. The DA diverts blood away from the lungs, sending it directly to the body.

The lungs are not used while a fetus is in the amniotic fluid because the baby gets oxygen directly from the mother’s placenta. When a newborn breathes and begins to use the lungs, the DA is no longer needed and usually closes during the first 2 days after birth.

But when the DA fails to close, a condition called patent (meaning “open”) ductus arteriosus (PDA) results, in which oxygen-rich blood from the aorta is allowed to mix with oxygen-poor blood in the pulmonary artery. As a result, too much blood flows into the lungs, which puts a strain on the heart and increases blood pressure in the pulmonary arteries.

    Julie Chenell DeNeen 1 year ago

    Thanks! She is doing great!!!

Mom2 1 year ago

I am too a mother of a TGA baby,a little baby boy. terrible news a few hours post my CS but I am so lucky to live in a country with an amazing free health care plan and very talented doctors. my advice is to rest at home with close family during surgery,you can not do anything at the hospital. we also found help in talking to other parents in icu.our boy is now almost a year, doing very well:))


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